Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Baby Born With Unusual Syndrome – 22 Years Later She Looks Amazing
These young, allegedly productive qualities are seen in the 99-63-91 body, which stands 1.68 meters tall.
In reality, though, a woman’s level of fertility would rely on a multitude of factors, with physical type playing a relatively minor role.
Despite the fact that obesity has been linked to miscarriages, pregnancy difficulties, and infertility in women, infertility problems can affect anyone, regardless of size.
Mary’s pregnancy and delivery had proceeded without any complications. There were no signs that their daughter Michelle experienced any problems when she was born. Yet the moment she opened her eyes, the physicians realized something wasn’t quite right. They didn’t figure out what it was until they perused medical texts and talked to a geneticist at a different hospital.
Michelle’s face was large and innocent. She had a nose like a little beak, and she was balding. It was discovered that she had Hallermann-Streiff syndrome, a hereditary illness of which there are only 250 known cases worldwide.
Michelle was born at Children’s Memorial Hospital, where no one had ever seen it in person.
When the doctor told us we had Hallermann-Streiff syndrome, my heart fell. “I was concerned about how we were going to care for our child who had a rare genetic disease that was one in five million,” Michelle’s mother said.
https://googleads.g.doubleclick.net/pagead/ads?gdpr=0&client=ca-pub-3764810839868565&output=html&h=125&slotname=2267562348&adk=2274863546&adf=1635431258&pi=t.ma~as.2267562348&w=500&abgtt=6&fwrn=4&lmt=1722439436&rafmt=11&format=500×125&url=https%3A%2F%2Favokaddo.com%2F2024%2F07%2F09%2F22-years-after-her-birth-with-an-unusual-syndrome-this-baby-still-looks-amazing%2F%3Ffbclid%3DIwY2xjawEXNVBleHRuA2FlbQIxMAABHTLgr-tDvvQv_encbGYXxnb2RPMBv7hWm1anTfkqAmLc-XB8bLPsWyteMw_aem_DOWg–5DA_ZguZbZqSrGGQ&wgl=1&uach=WyJXaW5kb3dzIiwiMC4zLjAiLCJ4ODYiLCIiLCIxMDkuMC41NDE0LjE2OCIsbnVsbCwwLG51bGwsIjY0IixbWyJOb3RfQSBCcmFuZCIsIjk5LjAuMC4wIl0sWyJHb29nbGUgQ2hyb21lIiwiMTA5LjAuNTQxNC4xNjgiXSxbIkNocm9taXVtIiwiMTA5LjAuNTQxNC4xNjgiXV0sMF0.&dt=1722439165483&bpp=1&bdt=303&idt=505&shv=r20240729&mjsv=m202407250101&ptt=9&saldr=aa&abxe=1&cookie=ID%3Dd6f422181fa8e320%3AT%3D1712754368%3ART%3D1722439170%3AS%3DALNI_MbQ8K8Uz_tQiOWk9_ho73iGWbUvXg&gpic=UID%3D00000de663175333%3AT%3D1712754368%3ART%3D1722439170%3AS%3DALNI_MZzkvLBsYSBf99BTmrLqXAWredf6A&eo_id_str=ID%3D880422cb866d8cdc%3AT%3D1712754368%3ART%3D1722439170%3AS%3DAA-AfjYIkHBaiiV25sK_LhuhTK3y&prev_fmts=0x0%2C870x280%2C500x125%2C1090x582%2C500x280%2C500x125%2C500x125&nras=3&correlator=466741613063&frm=20&pv=1&rplot=4&u_tz=420&u_his=2&u_h=768&u_w=1360&u_ah=728&u_aw=1360&u_cd=24&u_sd=1&dmc=8&adx=110&ady=3314&biw=1090&bih=582&scr_x=0&scr_y=1000&eid=44759876%2C44759927%2C44759842%2C95336641%2C95334528%2C95334829%2C95337868%2C95338229%2C31084185%2C95339225%2C95336267&oid=2&psts=AOrYGsltD6tJobRiYRp2riO6Mm6NF62wBuS6eykmEsk6yMqYqoZdu59cLjR9OzfmW5IvCin90D0v9bQ5_HA4FCkHPV9IOAs%2CAOrYGsn2l-aYFQzvRPyJYDr2uyDsnpva9fpRdgBQvTtyz7JUYlEfxH9qd6KaTnbDFFlaYGnC42tNmPqU9pa5uzfhnubFk8k%2CAOrYGslVRf2K4puqQwz_W00z7nLcoaG5rvyQ9goeizmgBI0btWZrTMNYSJa-mcZmvF9Yk-R4lpBNn8VZrj1ULbG9jm3I2U8&pvsid=4136035433878716&tmod=804641320&uas=1&nvt=1&ref=https%3A%2F%2Fl.facebook.com%2F&fc=1920&brdim=164%2C24%2C164%2C24%2C1360%2C0%2C1123%2C702%2C1107%2C582&vis=1&rsz=%7C%7CopeEbr%7C&abl=CS&pfx=0&fu=128&bc=31&bz=1.01&psd=W251bGwsbnVsbCxudWxsLDNd&ifi=6&uci=a!6&btvi=5&fsb=1&dtd=M
Michelle exhibits 26 of the 28 symptoms that are associated with the condition. Although the sickness affects only one in five million people, it can lead to a variety of health issues.
Michelle is just two years older than her sister, yet she can barely reach over her waist because of Hallermann-Streiff syndrome and dwarfism.
Because of her illness, Michelle needs a lot of help, including an electric wheelchair, a respirator, a hearing aid, a probe, and visual aids. Michelle and her family have also had to spend a lot of time in the hospital as a result of the illness. She may be mistaken for a toddler while being 25 years old due to her appearance.
As a 20-year-old, Michelle is happier than ever and as intelligent as a poodle. She is among the happiest twentysomethings I’ve ever met.Her mother Mary continued, saying:
She brightens people’s days with her happiness. She is aware of her differences, but she refuses to let them define her.
Michelle is a great, distinctive young woman despite her challenges. Among other things, she aspires to date and become like her older sister. She doesn’t mind his height because practically everyone is taller than her, but she wished his hair was longer.
Her goal is to become a doctor as well!
Kindly SHARE this article and send her best wishes!
Leave a Reply