Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I Saw My Child-Free Ex-husband Buying a Cart Full of Toys – When I Found Out Who They Were For, I Broke Down in Tears
I sat in my car for a moment, letting the memories wash over me. My name is Giselle, and my life has taken turns that I never saw coming.
Tanner and I met in college, and our connection was immediate and undeniable.
A young loving couple | Source: Midjourney
We got married young, filled with dreams of a future that seemed to stretch endlessly before us. But life has a way of twisting those dreams, and ours was shattered over a fundamental disagreement: children.
I had always wanted to be a mom. Tanner, on the contrary, was adamant about not having kids. Our arguments became more frequent, and our love strained under the weight of unmet expectations.
One night, it all came to a head. “Tanner, I can’t keep pretending this doesn’t matter to me,” I said, tears streaming down my face. “I want children. I need to be a mother.”
A woman cries during an argument with her husband | Source: Midjourney
Tanner’s face was a mask of frustration and pain. “Giselle, I told you from the beginning that I didn’t want kids. I can’t change who I am.”
“But we’ve built a life together,” I pleaded. “We can find a way to make it work.”
He shook his head, his voice breaking. “It’s not just about finding a way. It’s about fundamentally wanting different things. I don’t want to bring a child into this world when I know I can’t give them the love and attention they deserve.”
The silence that followed was deafening. We both knew what had to happen.
A couple sitting apart after an argument | Source: Midjourney
Eventually, we divorced. The pain was excruciating, but I believed it was the only way for both of us to find the happiness we deserved.
Several years went by. I rebuilt my life, found a good job, and surrounded myself with friends who became like family. But there was always an ache in my heart, a reminder of the life I once imagined.
Tanner and I kept in touch sporadically, mostly through brief text messages. We lived in the same town, but our paths rarely crossed, until a few days ago.
A woman lost in her thoughts while holding a cell phone | Source: Midjourney
I was at the local store, mindlessly wandering the aisles, when I saw him. Tanner was standing at the checkout, his cart overflowing with kids’ toys.
My heart stopped. I felt a rush of emotions: confusion, anger, and a deep, aching sadness. Why would he be buying toys? The man who didn’t want children was now a father? It felt like a cruel twist of fate.
Unable to quell my curiosity, I followed him. He loaded the toys into his car, and I trailed behind, feeling like a detective in one of those crime dramas.
A shopping cart filled with kids’ toys | Source: Midjourney
Instead of heading to a family home, he drove to a storage unit. I watched as he unloaded the toys, spending a long time inside. My mind raced with possibilities. Was he hiding a family? Keeping a secret from everyone?
When he finally left, I continued to follow him, my heart pounding in my chest. Tanner drove to the house we used to live in, the one we filled with dreams of a future together. There were no signs of a new partner or children.
A woman sitting in a car looking at something | Source: Midjourney
It looked exactly as I remembered, almost frozen in time. I felt a wave of exhaustion and embarrassment, but I couldn’t turn back now.
I took a deep breath and got out of the car, walking up to the door. My hand shook as I knocked. Tanner opened the door, his expression shifting from surprise to confusion.
“Giselle? What are you doing here?”
I hesitated, the words tumbling out in a rush. “I saw you at the store with all those toys. I thought… I thought you had a new family.”
A man in a store standing with a cart full of kids’ toys | Source: Midjourney
Tanner sighed, stepping aside to let me in. “It’s not what you think. Let me explain.”
The house was eerily familiar, every corner filled with memories. We sat down in the living room, the silence heavy between us. Finally, Tanner spoke.
“I know this must be confusing for you, Giselle. But it’s not what it looks like.” He took a deep breath, his eyes filled with sincerity. “I’ll tell you everything.”
A man talking to a woman while sitting in a living room | Source: Midjourney
I sat in stunned silence as Tanner began his story, and his voice was soft but full of emotion.
“Every Christmas, I dress up in a Santa outfit and go around to unfortunate neighborhoods, giving out presents to poor kids,” he said, his eyes misty with memories.
“Why?” I asked, still grappling with the shock of what he was telling me.
A woman looks shocked while talking to a man | Source: Midjourney
He took a deep breath, his gaze distant as if he were looking back through the years.
“When I was a child, my family was really poor. One Christmas, a stranger dressed as Santa showed up at our door with gifts. It was the highlight of my childhood. That moment, that kindness… it stuck with me. Ever since then, I’ve made it my mission to do the same for others.”
A little boy receives a present from Santa Claus on Christmas | Source: Pexels
I was speechless, the weight of my misconceptions pressing down on me. All this time, I had misunderstood his intentions and motives. He wasn’t buying toys for a new family; he was giving back to the community in the most selfless way possible.
“When I got my first job,” Tanner continued, “I decided that I would set aside part of my salary every month to buy toys and presents. I wanted to be ready for December, to make sure that no child in my old neighborhood had to feel the way I did back then.”
Assorted plush toys displayed in a shop | Source: Pexels
I could see the passion and dedication in his eyes, the way they sparkled when he talked about those kids. It was a side of him I had never seen before, and it made me realize how much I had misunderstood him.
“I just… I don’t know what to say,” I stammered, my emotions a tangled mess of admiration, regret, and a deep, aching respect. “Why didn’t you tell me?”
Tanner looked down, his voice barely above a whisper. “I didn’t want to make things more complicated than they already were. And honestly, I wasn’t sure you’d understand.”
A thoughtful man sitting in the living room | Source: Midjourney
His words stung, but I knew there was some truth in them. Our breakup had been messy, and I had been so focused on my own pain that I hadn’t considered his perspective.
“I’m so sorry,” I said, tears welling up in my eyes. “I was so angry and hurt when I saw you with those toys. I thought you had moved on and started a new family. I never imagined…”
He reached out and took my hand, his grip warm and reassuring. “You don’t need to apologize, Giselle. We both made mistakes. But I’m glad you know the truth now.”
Two people holding hands for support | Source: Freepik
We sat in silence for a moment, the weight of our shared past hanging in the air. Finally, Tanner stood up. “Come with me,” he said, a small smile playing on his lips. “I want to show you something.”
I followed him to the storage unit, my heart pounding with curiosity and anticipation. He unlocked the door and flicked on the light, revealing rows upon rows of neatly stacked boxes, each one filled with toys and gifts.
“This is incredible,” I said, my voice barely above a whisper. “You’ve done all this by yourself?”
A storage unit containing gift boxes | Source: Midjourney
Tanner nodded. “It’s taken years to build up, but it’s worth it. Seeing the smiles on those kids’ faces… It’s the best feeling in the world.”
As I looked around the storage unit, I felt a deep sense of admiration for Tanner. Our painful past had led to something beautiful and meaningful. I realized that sometimes people have reasons for their actions that we can’t see on the surface.
“Do you need any help?” I asked, surprising even myself with the question.
A couple standing in a storage unit and talking | Source: Midjourney
Tanner looked at me, his eyes wide with surprise and gratitude. “Really? You’d want to help?”
I nodded, a smile spreading across my face. “Yeah. I think it’s time I started giving back too.”
Over the next few weeks, Tanner and I spent hours together, preparing for Christmas. We sorted toys, wrapped presents, and made plans for the big day. It was hard work, but it was also incredibly rewarding. And as we worked side by side, we began to heal the wounds of our past.
A stack of wrapped Christmas presents | Source: Pexels
On Christmas Eve, we dressed up as Santa and his helper, loading up his car with gifts. As we drove to the first neighborhood, my heart raced with excitement and a little bit of nervousness. When we arrived, children gathered around us, their eyes wide with wonder and joy.
“Ho, ho, ho!” Tanner bellowed, handing out gifts with a twinkle in his eye. The children’s laughter and smiles were infectious, and I felt a warmth spread through me that I hadn’t felt in years.
Santa Claus holding a present beside a Christmas tree | Source: Pexels
We spent the night visiting different neighborhoods, bringing joy to dozens of kids. It was a magical experience, and it brought Tanner and me closer than we had been in a long time. By the time we returned to his house, we were exhausted but happy.
“Thank you, Giselle,” Tanner said as we unloaded the car. “I couldn’t have done this without you.”
I smiled, feeling a sense of fulfillment I hadn’t felt in years. “No, Tanner. Thank you. For showing me that there’s still good in the world, and for helping me find my way back to it.”
A woman talking to a man dressed as Santa Claus | Source: Midjourney
As I drove away, I felt a weight lift off my shoulders. Our story had taken an unexpected turn, but it brought healing and hope to both of us.
The next morning, Christmas Day, I woke up with a sense of peace. I knew that our story was far from over, but for the first time in a long time, I felt hopeful about the future.
As I sipped my coffee and looked out the window at the snow-covered ground, I smiled, thinking about the children who had woken up to find presents from Santa.
A woman drinking coffee and looking out the window on Christmas Day | Source: Midjourney
Tanner and I had found a way to turn our pain into something beautiful. And in doing so, we had found a way back to each other, not as husband and wife, but as friends and partners in a mission to bring joy to the world. It was a new beginning, one filled with hope, understanding, and a renewed sense of purpose.
Ready for another heartwarming adventure? We’ve got you covered: Imagine returning home to find your kid sitting out on the street selling stuff from your home. I was stunned to see my cherished items up for sale, too! When I asked my daughter why she had done that, my heart shattered into a million pieces.
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