In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
If you see a man with one painted fingernail, here’s what it means
When Elliot Costello and a group of other people visited Cambodia, he had an encounter with a young girl named Thea.
Little did Elliot know that this encounter would have an impact so profound on him that it would help start a movement whose goal is to end sexual abuse against children.
Namely, Thea always had nail polish on her tiny nails. One day, as she and Elliot chatted, she asked to paint one of his nails. He agreed and was happy to speak to the chatty girl, but he then learned that she was once a victim of sexual abuse.
“As she painted one of my nails, I assured her I would always keep it that way to remember her, and by extension, her suffering,” Elliot said.
This motivated Elliot to try and make positive change among men so that less and less children fall victims of sexual abuse.
That is when he came up with the movement called #PolishedMan where men put nail polish on one of their nails. That one nail represents the one in five children who will be victims of sexual violence.
Polished Man works towards ending sexual violence against children. According to the organization, “being a Polished Man means challenging violent behavior and language, both locally and globally.”
Elliot believes that since men are responsible for 96% of this type of violence against children globally, they should be catalyst for change if we are ever to see an end to the abuse of innocent children.
The goal with the painted nail isn’t just to remind people of the number of children who are abused every single day, but to serve as a conversation starter about this reality, leading to new ideas about prevention. He also hopes that people will start donating to “support educational programs and resources for child survivors of abuse,” as per APlus.
We hope that more men, including celebrities would be willing to join this movement.
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