The parents of a baby named Robyn, who was born very tiny at just 11 ounces (328 grams), have finally brought her home after 18 months in the hospital.
Robyn was born five months early in March 2023 at Grange Hospital in Cwmbran, Torfaen, and she still needs special care all the time. Her parents, Chantelle (34) and Daniel (38) from Malpas, Newport, are raising money for her treatment. Chantelle said, “It’s like a dream come true to have Robyn home.”
Robyn was born at just 23 weeks and 2 days and was so tiny that she could fit in the palm of a hand. To keep her organs warm while she grew, she was kept in a sandwich bag.
After six months in the hospital, she spent another seven months in the pediatric intensive care unit at Noah’s Ark Children’s Hospital in Cardiff. She then returned to Grange Hospital until she was finally discharged in September.
Chantelle, who works part-time as an accountant, said, “It’s just so nice to do normal family things… and just all be together under one roof.”
Daniel, a self-employed bricklayer, mentioned that it’s much less chaotic at home now. He has had to cut back on work to focus on taking care of his daughter.
Robyn gets oxygen and nutrition through tubes in her nose and mouth, and her vital signs are watched all the time. She takes 30 doses of medication each day.
Her mom, Chantelle, explained, “She can’t cough, so we have to suction her mouth and nose throughout the day when she needs it.”
Daniel described Robyn as doing well and enjoying the “peace” of being at home. He added that they do a lot of physical therapy and play with her to help her senses.
Chantelle said it was tough to bond with Robyn in the busy hospital ward, with doctors and nurses always coming in and out.
“All you can do is sit next to her and watch,” she explained, “keeping an eye on the numbers on the screen and hoping she will be okay.”
“When Robyn was born, we weren’t sure if she would survive.
“As time went on, she grew bigger and stronger, but she still faced many problems. It became clear that her brain damage would have a big impact on her.”
‘We know nothing is impossible’
“We didn’t learn about her brain damage until about six months after she was born,” Daniel said.
“You have all these plans for how life will be, and then everything changes,” he added.
“But we try to stay positive.
“We know that nothing is impossible for Robyn because she has been told so many times that she wouldn’t be able to do things or even survive, but she keeps proving everyone wrong.
“She’s full of surprises, and I believe she will create her own story.”
Lori and George, the oldest living Siamese twins in the world, have passed away
The world mourns the loss of the oldest known conjoined twins, Lori and George Schappell, who both passed away at the age of 62 in their Pennsylvania hometown.
Born on September 18, 1961, in Reading, Pennsylvania, Lori and George shared a rare connection, being conjoined at the skull while having separate bodies. They were linked by 30% of their brains and essential blood vessels.
Their incredible life journey came to a close on April 7 at the University of Pennsylvania Hospital in Philadelphia, as noted in their obituary. The specific cause of their passing has not been revealed.
George, who lived with spina bifida, used a mobility device for assistance, while Lori facilitated their movements by pushing and guiding his rolling stool. Their form of conjoined twins is exceptionally rare, affecting only about 2% to 6% of cases of congenital twins, according to NBC Today.
In a landmark moment for their lives, George transitioned in 2007, making them the first same-sex conjoined twins to identify as different genders, as recognized by Guinness World Records. During their trip to London in 2011 to celebrate their 50th birthday, George shared insights about his journey with The Sun, stating: “I knew from a very young age that I was supposed to be a boy”.
Both Lori and George completed their education at the Hiram G. Andrews Center and later worked at Reading Hospital. Despite their physical connection, they each pursued their own passions and hobbies. George followed his love for music as a country singer, captivating audiences globally, while Lori thrived as an accomplished bowler.
Remarkably, the Schappells enjoyed an independent lifestyle since turning 24. Initially, they lived in a care facility, then transitioned to a two-bedroom apartment where they each had their own space. They highlighted the significance of privacy, emphasizing that even with their physical bond, they found ways to enjoy solitude when needed
“Would we ever separate? Absolutely not”, George stated in a 1997 documentary: “My theory is, why fix what isn’t broken?”
Lori echoed this sentiment in a 2002 interview with the Los Angeles Times, saying: “I don’t believe in separation”. Our heartfelt condolences go out to the family and friends of Lori and George during this challenging time.
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