Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
I Was the Only One Who Went to My Grandma’s Birthday Brunch — After Seeing Her Tears, I Taught My Family a Lesson
My dear Gran-Gran invited our family to celebrate her birthday, and that’s when it all began. I had no idea that my family would let her down in such a painful way. I was resolved to impart a lesson on them that they would never be able to forget.
Gran-Gran is a remarkable woman who raised my siblings and me essentially during our parents’ divorce. She is everything to me, thus I found it incomprehensible that the other members of my family could let her down.
Rather than having us arrange something exceptional for her 83rd birthday, Gran-Gran decided to host a brunch at her home. She got up early to bake her own bread and pastries in spite of her health problems. Even though her hands were shaking, she wrote and assembled the invitations herself.
I was inspired to attend by Gran-Gran’s special day by the time and work she put into it. Regretfully, work obligations caused me to arrive ten minutes late. I was astonished to find my grandmother clearing dishes off the table and putting coffee down the sink when I first went in.
I questioned Gran-Gran why there was nobody else at the celebration, feeling both confused and worried. She told me, fighting back tears, that nobody had bothered to come. Her attempts to conceal her disappointment and act as though everything was fine crushed my heart.
I was unable to overlook this. I vowed to myself that I would make up to Gran-Gran and leave my family with a lasting lesson. I excused myself and went outside to make some phone calls after spending some quality time with her.
Initially, I informed my mother over the phone that my grandmother had fallen and was currently in the hospital. I put her under pressure by telling her that if she had gone to the brunch, the accident might have been prevented. My mother consented to send funds to pay the fictitious hospital expenses.
Next, I called my brother and asked him why he hadn’t been there. I informed him that Gran-Gran was hospitalized and that his presence might have had an impact. He said he would pay some money toward the imaginary bills.
I called additional relatives in a similar way, making them feel bad and persuading them to contribute money for the purported hospital bills. I surprised Gran-Gran with a trip to a stunning location she had always wanted to see with the money we raised.
We made wonderful memories together and lavishly celebrated her birthday during our time together. Gran-Gran was beaming with happiness when we got home. My family never missed another event after that day. Every birthday, holiday, and Sunday meal they attended.
I had no remorse about what I did, even though they still gave me the cold shoulder over it. Gran-Gran’s joyful expression made it all worthwhile. How would you have responded if you had been in my position? Tell me what you think.
Though it has been romanticized for artistic purposes, this work draws inspiration from actual individuals and events. For reasons of privacy protection and story improvement, names, characters, and details have been changed. Any likeness to real people, alive or dead, or real events is entirely accidental and not the author’s intention.
The publisher and author disclaim all liability for any misinterpretation and make no claims on the veracity of the events or character portrayals. The thoughts represented in this story are those of the characters and do not necessarily represent the viewpoints of the author or publisher. The story is offered “as is.”
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