Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
SCHOOL EMBARRASSES TEEN OVER OUTFIT—HER DAD’S HILARIOUS REVENGE IS UNFORGETTABLE
In August 2017, Tony Alarcon’s phone rang unexpectedly.
Like many parents, he thought it might be a telemarketer. But this time, he answered the call.
Hearing from the school can be nerve-wracking for any parent. Tony immediately started worrying—was his daughter, Demetra, okay? Had something happened?
What he found out left him surprised.
It was a hot summer day in Northern California, with temperatures reaching 90 degrees. Tony had dropped off his 13-year-old daughter, Demetra, at school that morning. She wore a blue romper to stay cool in the heat, and neither of them thought the outfit would cause any issues.
Demetra, a student at Raymond J. Fisher Middle School in Los Gatos, California, had simply dressed for the weather.
Not everyone agreed with Demetra’s outfit. A teacher at her school said her romper was “too distracting” for the boys.
When the teacher told Demetra that her outfit was too short, her dad, Tony, rushed back to the school with a change of clothes—jean shorts and a tank top. But the school said those clothes were also inappropriate.
Tony was shocked. He asked Demetra to bend over and touch her toes in front of the school administrator. “Nothing is hanging out. There’s nothing inappropriate. I don’t understand this dress code rule,” he told TODAY.
Still, the school said her clothes were “distracting.” Since it was 90 degrees outside, Tony had no choice but to go to his car and grab a pair of leggings for Demetra to wear.
Demetra felt embarrassed.
Tony expressed his frustration, saying, “She’s just a kid. She’s only 13. She’s not trying to be a sex symbol. She just wants to be comfortable and attend class, but we’re not giving her that chance.”
This wasn’t the first time Demetra had been in trouble for her clothes. Just a week before, she was called out for a visible bra strap. “When I got dress coded last week, they said my bra strap was showing,” Demetra told the *San Jose Mercury News*. “Like, I’m wearing a bra—what’s the big deal?”
Tony, a successful investment advisor and father of two, didn’t let it go. Angry at what he saw as an unfair rule that mostly targeted girls, he took his complaint to social media. Parents from all over the country showed their support, agreeing that the school’s dress code was outdated and unfair to girls.
“Demetra’s not the only one. If you sit in the school parking lot, you’ll see that,” Tony said. “Lots of girls just want to be comfortable, but they feel forced to wear leggings even when it’s 100 degrees outside.”
Tony believed that parents, not schools, should decide if their children’s clothes are appropriate. He was also worried about how being told their clothing is a “distraction” to boys could affect young girls emotionally in the long run.
The story quickly got attention from the media, with major news outlets reporting on Tony’s efforts to change the dress code. While the school didn’t speak on camera, they did release a statement:
“The Los Gatos Union School District believes that appropriate dress and grooming contribute to a productive learning environment,” the district said. “Students are expected to wear clothes that reflect the core values of our learning community.”
Tony’s efforts made an impact. His push for change led the Los Gatos Union School District to reevaluate its dress code to make it fairer and less strict for all students.
Lisa Fraser, the school’s principal, explained that the dress code rules, called “Fashion Faux Pas,” apply to both girls and boys. Some of the rules include no hats or hoods indoors, no visible underwear, no inappropriate logos or words, and shorts must have at least 4-inch inseams.
“There has always been a dress code,” Fraser told a newspaper. “These are basic rules for appropriate behavior. I can set guidelines for the school, but I want them to reflect the community’s values.”
In the end, Tony Alarcon’s persistence started an important discussion about how school dress codes affect young girls — showing that one parent’s voice can truly make a difference.
What do you think about the school’s dress code? Have you or your children faced a similar situation? Share your thoughts and experiences in the comments!
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