Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

Sad News: Iconic Actor Tamayo Perry Dies in Tragic Shark Attack
We are deeply saddened to report that beloved actor Tamayo Perry, 49, tragically passed away today in what appears to be a shark attack. Emergency Medical Services in Honolulu confirmed that Tamayo’s body was discovered on Sunday, bearing several bite marks.

Tamayo Perry was well-known for his remarkable talent and unforgettable performances. He captured the hearts of audiences around the world with his lead role in several highly acclaimed movies, including the iconic Disney film, “Pirates of the Caribbean: On Stranger Tides.”
Tamayo’s untimely demise is a devastating loss not only to the entertainment industry but also to his countless fans. His incredible talent, infectious charm, and captivating screen presence made him a true legend. He will be deeply missed by all who knew and admired him.

The loss of Tamayo Perry serves as a reminder of the unpredictability and inherent dangers that can lurk beneath the surface of our natural world. While we grieve this tragic event, it is essential to remember the joy and inspiration that Tamayo brought to our lives through his extraordinary performances.
Let us honor Tamayo Perry’s memory by cherishing the legacy he has left behind, celebrating his incredible contributions to the film industry, and keeping his loved ones in our thoughts during this difficult time. May he rest in eternal peace.
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