With the rise of social media, we’re constantly seeing images of perfect-looking people, making the world seem even more focused on appearances.
For those who don’t fit this “perfect” mold, life can be tough, with strangers feeling the need to criticize others based on their looks.
Karine de Souza knows this all too well. The Brazilian woman has a rare skin condition that requires her to cover her skin in SPF100 sunscreen, even when she’s indoors.
At age three, Karine was diagnosed with Xeroderma Pigmentosum, a rare condition that makes her very sensitive to sunlight and puts her at high risk for skin cancer.
This condition, which has no cure, means her skin can’t repair damage from UV rays. Just a few minutes in the sun can lead to very painful sunburns for her. As a child, she had to stay inside most of the time because being outside was too dangerous.
She explains, “I don’t feel anything right away when I’m in the sun, but later on, I get painful lesions that need to be removed because of cancer.”
Karine has had 130 surgeries to remove lesions caused by the sun, including parts of her lower lip and nose.
But her challenges go beyond physical pain. She often gets stared at and has faced verbal abuse both in person and online.
Despite all this, Karine stays positive and happy. She even found love with her husband, Edmilson, whom she met through social media. Edmilson was drawn to her story and strength, and he’s always been by her side, knowing he wanted to spend his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said, as per the Daily Mail.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Lori and George, the oldest living Siamese twins in the world, have passed away
The world mourns the loss of the oldest known conjoined twins, Lori and George Schappell, who both passed away at the age of 62 in their Pennsylvania hometown.
Born on September 18, 1961, in Reading, Pennsylvania, Lori and George shared a rare connection, being conjoined at the skull while having separate bodies. They were linked by 30% of their brains and essential blood vessels.
Their incredible life journey came to a close on April 7 at the University of Pennsylvania Hospital in Philadelphia, as noted in their obituary. The specific cause of their passing has not been revealed.
George, who lived with spina bifida, used a mobility device for assistance, while Lori facilitated their movements by pushing and guiding his rolling stool. Their form of conjoined twins is exceptionally rare, affecting only about 2% to 6% of cases of congenital twins, according to NBC Today.
In a landmark moment for their lives, George transitioned in 2007, making them the first same-sex conjoined twins to identify as different genders, as recognized by Guinness World Records. During their trip to London in 2011 to celebrate their 50th birthday, George shared insights about his journey with The Sun, stating: “I knew from a very young age that I was supposed to be a boy”.
Both Lori and George completed their education at the Hiram G. Andrews Center and later worked at Reading Hospital. Despite their physical connection, they each pursued their own passions and hobbies. George followed his love for music as a country singer, captivating audiences globally, while Lori thrived as an accomplished bowler.
Remarkably, the Schappells enjoyed an independent lifestyle since turning 24. Initially, they lived in a care facility, then transitioned to a two-bedroom apartment where they each had their own space. They highlighted the significance of privacy, emphasizing that even with their physical bond, they found ways to enjoy solitude when needed
“Would we ever separate? Absolutely not”, George stated in a 1997 documentary: “My theory is, why fix what isn’t broken?”
Lori echoed this sentiment in a 2002 interview with the Los Angeles Times, saying: “I don’t believe in separation”. Our heartfelt condolences go out to the family and friends of Lori and George during this challenging time.
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