Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
\
Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Little Boy Cries & Begs Mom Not to Take Him to Daycare until She Storms into Facility – Story of the Day
A three-year-old throws tantrums and begs his mother not to go to daycare. Worried, she goes in unannounced and what she sees shocks her.
“No, mommy, no!” Johnny threw himself on the floor and started screaming. Marla Evans sighed. Not again! She looked at her watch. If he threw a full tantrum, she would be late yet again.
She gazed at her three-year-old with exasperation. Johnny had been going to daycare for two years and always loved it. For the last week, out of the blue, he’d been making a scene, begging Marla not to take him.
For illustration purposes only | Source: Unsplash
She’d spoken to her pediatrician, and the doctor had told her that toddlers often went through the ‘terrible threes.’ “Stop it!” Marla heard herself scream, then she saw the look of fear in her son’s eyes. Something wasn’t right.
Marla sat down on the floor next to Johnny and coaxed him into her lap. He sobbed, pressing his little face against hers. Marla decided this was more than a tantrum, but what could be wrong?
“Honey,” Marla said gently. “I’m sorry. Mommy didn’t mean to snap.” She rocked him until he stopped crying and asked gently, “Why don’t you like daycare anymore?”
Raising a child is about setting and respecting boundaries.
Johnny shivered in her arms and whispered, “I don’t like!”
“But why, sweetie?” Marla asked. “Are the other kids mean?” But Johnny wouldn’t answer. Marla sighed. “Baby, mommy needs to go to work, but I tell you what… I’m going to come and get you from daycare early today, OK?”
For illustration purposes only | Source: Pexels
Johnny sat up in her lap. “No lunch?” He looked up at her anxiously. “No lunch, mommy?”
Lunch? The worried mom frowned. What was happening with her son?
Marla dropped Johnny off after promising she’d fetch him before lunch. He walked into the daycare quietly but threw Marla a pleading look that left her heartbroken.
She went to work and asked her boss for the afternoon off to deal with a personal issue. Thankfully, her boss was a mom too and understood!
Marla was determined to get to the bottom of Johnny’s reluctance to go to daycare. She decided to drop in — not before lunchtime as she promised Johnny — but during the meal.
Johnny’s daycare didn’t allow the parents into the children’s playrooms or the dining room, but each door of the facility had a large, clear glass window. Hopefully, Marla would be able to see what — if anything — was going on.
When she arrived, the receptionist told her the children were having lunch. Marla walked to the dining room and peered in. The kids were all sitting at their tables, eating.
For illustration purposes only | Source: Unsplash
A teacher or an assistant supervised each table. Marla quickly spotted Johnny. There was a woman Marla didn’t recognize sitting next to him.
As Marla watched, the woman picked up Johnny’s spoon, scooped up a portion of mashed potatoes, and pressed it against his lips. “Eat!” she cried. Johnny shook his head violently, his mouth firmly closed, tears running down his cheeks.
“Open your mouth and eat!” the woman said angrily. Johnny was looking deeply distressed. The woman cried, “You are going to sit here until you clear your plate!”
Marla saw a small portion of mince, mash, and vegetables left on Johnny’s plate, and she knew her son. Johnny was not a big eater; she never pushed it when he told her he’d had enough.
Johnny opened his mouth to protest, and the teacher quickly pushed the spoon in. Marla saw her son choke and sputter. She’d had enough! She opened the door and stormed in.
“Get away from my son!” she cried.
For illustration purposes only | Source: Pexels
The woman looked up, and her mouth hung open. “Parents aren’t allowed in the dining room!” she cried.
“Then they should be,” Marla said, reining in her anger. “Can’t you see Johnny’s had enough? He’s a healthy boy, but he is not a big eater. As an educator, you should know how traumatic force-feeding a child can be.
“Being forced to clean up the plate is an old-fashioned notion. You should be aware of the statistics and the causes of obesity and eating disorders in children.
“And one of them is making food an issue! My little boy is an active child, and if he feels he’s had enough, you need to respect that and not force him to eat.
“As for shoving food into a child’s mouth in that way, it is reprehensible! You should certainly know better. These children are not puppets for you to manipulate at will!
“They are little people with needs and a will of their own. If you don’t respect their boundaries, you teach them they don’t deserve respect. I don’t think that is a message you want to pass on!”
For illustration purposes only | Source: Unsplash
The teacher flushed a bright red and got to her feet. “I never…” she cried.
“That’s a pity,” Marla said crisply. “Because if this happens again, I will ensure you are out of a job! I’m not sending my son to daycare to be brutalized!”
Marla walked over to Johnny and tenderly wiped his mouth. “Come on, honey,” she said gently. “Mommy promised you a treat this afternoon!”
Marla had a long talk with Johnny, and there was no tantrum the next morning. Over the next few weeks, she popped into the daycare at lunch times just to keep an eye on things.
The teacher never forced Johnny to eat again, and the boy recovered his good humor and enthusiasm.
For illustration purposes only | Source: Pexels
What can we learn from this story?
- Children and their boundaries should be respected. Johnny’s teacher was teaching him that adults had the right to impose their will on children against their welfare.
- Raising a child is about setting and respecting boundaries — theirs and ours. A child whose boundaries are not respected is insecure and has low self-esteem.
Share this story with your friends. It might brighten their day and inspire them.
Leave a Reply