A baby with a rare skin disorder is born after an urgent C-section by medical professionals.

Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.

Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.

After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.

This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.

At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.

Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.

Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”

Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.

Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”

The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.

Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.

It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.

She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.

“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.

She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.

In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.

Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.

Remembering the Loss of Reba McEntire’s Band Members

“The tip of the plane’s wing hit a boulder on the edge of Otay Mountain, and it killed everyone on board,” McEntire told Oprah. “When we were notified, Narvel went to our pilot and told him what had happened.”
“When Narvel returned to the hotel room where I was — two or three a.m. — and said one of the planes had crashed, I asked, ‘Are they OK?’ ‘I don’t think so,’ he responded. ‘But you’re not sure?’ I asked. ‘I don’t think so,’ he replied.”
According to McEntire, they were anxious to learn the specifics of the catastrophe.
“Narvel was going room to room with a phone, ringing…” she said, pausing as tears rose. “I’m sorry – it’s been 20 years, but I don’t think it ever stops hurting,” she added. “But, I can see that chamber. Narvel is pacing back and forth.”

Friends like Vince Gill and Dolly Parton offered McEntire their bands to finish the tour, but she declined. For My Broken Heart, her next album was dedicated to the band members she had lost, and it debuted at No. 1 on the Billboard Top Country Albums chart, selling four million copies.
On the anniversary of the tragedy, McEntire regularly pays tribute to those who died that day. She used Instagram to commemorate the crash anniversary in 2014. On the 25th anniversary of the tragedy in 2016, she took a memorable trip to San Diego and shared it with admirers on social media.

McEntire wrote, “Today is the 25th anniversary of the plane accident.” “In November last year, I returned to San Diego and took a helicopter to the accident site. I have a feeling they realize how much we miss them. My heartfelt condolences and prayers go out to all the families and friends.”

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